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salutemed.it Forum Index » » CFS Stanchezza cronica » » Hello From America
Autore Hello From America

Registrato: Mar 24, 2004
Messaggi: 1
Località: New Mexico, USA
Inviato: 2004-03-24 04:11   
I do not speak Italian but I want to wish you all who suffer with CFS a warm hello.
Nick came to our FMS/CFS board at www.immunesupport.com and said hello. Now I return his Salud.


  Visualizza il profilo di Takesha      Modifica/cancella questo Messaggio   Rispondi riportando il messaggio originario

Registrato: Oct 23, 2003
Messaggi: 639
Inviato: 2004-03-24 12:39   
dal sito proposto sopra:

Dr. Jacob Teitelbaum's Treatment Protocol for Chronic Fatigue Syndrome & Fibromyalgia

Dear patient,

Below is a listing of the more common treatments used in treating Chronic Fatigue Syndrome & Fibromyalgia. I would use this list as a record of your treatments and have it with you for follow-up/phone visits. Print it out and put an "x" through the number in front of any treatment you stop and note the reason you stopped it and the date. Put the date started in front of the other treatments. Although it can take 6 weeks to see a treatment's benefits, most of the medications’ side effects will usually occur within the first few days of starting a treatment.

Except for treatments #1 through 18 under “Nutritional Treatments” which can all be started in the first 1 to 3 days, add in 1 new treatment each 1 to 3 days. If a side effect occurs, stop the last 2 or 3 treatments for a few days and see if it goes away. If the side effect is worrisome, call your treating physician (or go to the local hospital ER) immediately. If needed, all treatments (except if you've been on Remeron/mirtazapine, Thyrolar, Natural Progesterone, Prozac, Effexor, Serzone, Celexa, Wellbutrin, aspirin, Heparin, MSM, and/or Neurontin for over 2 months - then taper these off) can be stopped until the situation is resolved.

Do not get pregnant on treatment or drive if sedated. It is normal for a woman's periods to be irregular during the first 3 to 4 months of treatment. You can begin to slowly taper off most treatments when you feel well for 6 months. On average, it takes 3 months to start feeling better. Stop things one at a time (e.g., one every 1 to 3 weeks) so you can see if you still need it. If needed, any or all of these treatments can be used forever (although usually that is not necessary). For supplies ordered from Pro Health (800-366-6056) please note you were referred from Dr. Teitelbaum's protocol and they will then make a charitable contribution to my tax exempt foundation.

Nutritional Treatments for Chronic Fatigue Syndrome
Sleeping Aids For Fibromyalgia
Thyroid supplementation
Adrenal Hormones
Other Hormones
Antiviral Agents
Anti-Yeast Treatment
Immune Stimulants
For Brain Fog
For Migraines
Treatment For Parasites
Treatment for Bacterial, Mycoplasma, Chlamydial, Bladder Infections With E-Coli or Other Infections
Nonspecific Treatments
Pain Treatments
Dr. Goldstein Protocol Treatments
Follow Up Testing

Nutritional Treatments for Chronic Fatigue Syndrome

1. Multiple One (from Pro Health/ImmuneSupport.com)

2. Pro Energy (magnesium/malic acid) -2 tablets 3 x a day for 8 months, then 2 tablets a day (less if diarrhea is a problem). Available from Pro Health/ImmuneSupport.com. Start with 1 to 2 a day and slowly work up as able without getting uncomfortable diarrhea. You can take up to 10 a day for constipation. Taking it with food may lessen diarrhea. If pain or fatigue recur on lowering the dose, increase it. Taken at bedtime, it helps you sleep.

3. Calcium -500 to 1000mg daily with 400 units of vitamin D (a chewable calcium or Calcium Citrate or Chelate is recommended). If you get a non-chewable tablet, see if it dissolves in 2 to 3 inches of vinegar over 1 hour (swirl a few times). If not, it won't dissolve in your stomach, and you need to get a different brand. (Do not drink the vinegar.) You can also avoid this problem by using capsules or liquid filled gelcaps. Taken at bedtime, it may help sleep.

4. Lipoic Acid -200mg a day (protects the liver) for 6 to 9 months. Especially important to take whenever you're on Sporanox or Diflucan. If you have active Hepatitis or Cirrhosis, consider 300 to 2000mg a day depending on its severity.

5. Vitamin B12 –400 mcg under your tongue daily.

6. Vitamin B-12 -1 I.M. injection (1 cc = 3000 mcg) 3 to 5 times weekly for 15 doses, then as needed (e.g., 1 to 12 times a month). This needs to be made by a compounding (holistic) pharmacy (e.g., Cape Drugs 800- 248-5978).

7. NAC (N-Acetyl-L-Cysteine) -500mg a day for 9 months - then as needed. OR Glutathione 200 to 250mg a day (better than NAC but more expensive).

8. Chromagen FA (iron) -one tablet a day. Do not take within 6 hours of thyroid hormone preparations or Cipro (antibiotic), as this can prevent their absorption. Take on an empty stomach (i.e., take between 2 and 6 PM on an empty stomach). It is OK to miss up to 3 doses a week. Stop in 4 to 6 months or when your Ferritin blood test is over 40. It may turn your stool black. Take vitamin C 500 to 1000mg with each tablet.

9. Flaxseed/Borage Oil –1050mg –3 capsules 2 times a day for 9 months. Use Flaxseed oil without Borage oil if you have been diagnosed with bipolar disorder (manic depression). Dry eyes, mouth and hair suggest a need for this treatment.

10. SAM-e -200mg -1 tablet, 1 to 4 times a day (from Pro Health/ImmuneSupport.com).

11. Vitamin E -400 units a day (use natural Vitamin E).

Mitochondrial Energy Treatments - Use these for 9 months. Then drop the dose to the lowest dose that maintains the effect (or stop it if no benefit is achieved.)

12. Acetyl-L-Carnitine -500mg -2 capsules twice a day for 3 months. Then 250 to 500mg/day or stop taking it. Although important in Chronic Fatigue Syndrome/Fibromyalgia, it is even more important to take this supplement if you also have Mitral Valve Prolapse and/or elevated blood triglycerides. Take less of the product or L-Carnitine can be substituted if the cost is prohibitive for you.

13. Coenzyme Q10 -100-200mg -1 x a day. Especially important if taking cholesterol lowering prescriptions (e.g., Mevacor). Take it with a meal that has fat, oil supplements or in an oil based form to improve absorption.

14. L-Lysine -1000mg -3 x a day for 3 months, then 1000 mg a day. Take also if you have oral cold sores or genital Herpes outbreaks to suppress them.

15. L-Arginine -2000mg 2 to 3 times a day (do not take if it flares Herpes outbreaks or take Lysine with it).

16. Magnesium/potassium Aspartate -2 capsules- 2 x a day (need to use a "fully reacted" brand).

17. B-complex -50mg --tablet(s) at night.

18. NADH (Enada brand) - 5mg - 2 tablets each morning. Take it on an empty stomach first thing in the morning (leave it by your bedside in the bottle or foil wrap your dose and have a glass of water available to drink with it) at least ½ hour before eating, drinking coffee/juice or taking any medication or supplements (except thyroid, which you can take with the NADH). It usually takes 2 months to find out if it works. 15 to 20mg a day may be more effective and is a safe dosage. Don't take vitamin C, Malic Acid, Lipoic Acid or other acids within 2 to 3 hours of NADH, as acid destroys the effectiveness of NADH.

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Sleeping Aids For Fibromyalgia
You can try these in the order listed or as you prefer based on your history. Adjust dose as needed to get 7-8 hours of continuous sleep without waking or hangover. No going to the bathroom if you wake up unless you still have to go 10 minutes later. Mixing low doses of several treatments is more likely to help you sleep without a hangover than a high dose of one medication. You can take up to the maximum dose of all checked-off treatments simultaneously.

Do not drive if you experience next-day sedation. If you're not sleeping 7-8 hours a night without waking on the checked off treatments, do not wait until your next appointment to contact your physician! Ambien, Klonopin, Xanax and Soma are considered potentially addictive - I've never seen this happen though, with the recommended dosing below. If you have next-day sedation, try taking the medications (except the Ambien) a few hours before bedtime. The antidepressants (e.g., Prozac/Paxil) can improve sleep a lot after 6 weeks. Taking your Magnesium and/or Calcium at night also can help sleep.

19. Ambien (zolpidem) -10mg- 1/2 to 1 tablet at bedtime. If you tend to wake during the night, leave an extra 1/2 to 1 tablet at your bedside and you can take it as needed to help you sleep through the night.

20. Desyrel (trazodone) -50mg – 1/2 to 6 tablets at bedtime. Although sedating, it can be used (50-250mg at a time) for anxiety. Do not take over 450mg a day (or 150mg a day if on other antidepressants).

21. Passion Flower (Passiflora) -100 to 200mg at night. This is also good for anxiety experienced during the day.

22. Klonopin (clonazepam) – 1/2mg -begin slowly and work your way up as sedation allows. Take 1/2 tablet at bedtime increasing up to 6 tablets at bedtime as needed. Can be effective for sleep, pain and Restless Legs Syndrome.

23. Melatonin- 3/10 mg -1 tablet at bedtime. Don't use a higher dose, unless you find it to be more effective (3/10mg is usually as effective as 5mg- and may be safer).

24. Doxylamine (Unisom For Sleep) -25mg at night (an antihistamine).

25. Soma (carisprodol) –1/2 to 1 tablet at bedtime. This is very good if pain is severe.

26. Flexeril (cyclobenzaprine) -10mg- 1/2 to 2 tablets at bedtime. Note that this muscle relaxant can cause dry mouth.

27. Kava Kava -30% extract -250mg capsules -1 to 3 capsules at night (if a rash develops add a B-complex, 50mg at night -and stop/decrease the dose/frequency of use. If the rash persists, see your doctor).

28. 5-HTP (5 Hydroxytryptophan) -100 to 400mg at night. Naturally stimulates Serotonin.

29. Remeron (mirtazapine) -15mg -1 to 3 tablets at bedtime (especially helpful if you feel like you're "hibernating" throughout the day).

30. Elavil (amitriptyline) -10mg- 1/2 to 5 tablets at bedtime. May cause weight gain or dry mouth. Good for nerve pain and vulvodynia.

31. Xanax (alprazolam) – 1/2mg – 1/2 to 4 tablets at bedtime. This is short-acting and gives a good 3 to 5 hours sleep with less hangover effect in the morning.

32. Sinemet 10/100- 1 tablet at 6 to 9 PM each evening for Restless Legs Syndrome.

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Hormonal Treatments for Chronic Fatigue Syndrome

Thyroid supplementation - several studies show that thyroid therapies can be very helpful in Chronic Fatigue Syndrome/Fibromyalgia, even if your blood tests are normal. This treatment is, however, very controversial even though it's usually very safe. All treatments (even aspirin) can cause problems in some people, though. The main risks of thyroid treatment are:

1. Triggering caffeine-like anxiety or palpitations. If this happens cut back the dose and increase by 1/2 to 1 tablet each 6 to 8 weeks (as is comfortable) or slower. Sometimes taking vitamin B1 (thiamine) 100 to 200mg a day will also help. If you have severe, persistent racing heart, call your doctor and/or go to the emergency room.

2. Like exercise (e.g., climbing steps), if one is on the edge of having a heart attack, thyroid hormone can trigger it. In the long run though, I suspect thyroid may decrease the risk of heart disease. If you have chest pain, go to the emergency room and/or call your doctor. It will likely be chest muscle pain (not dangerous) but better safe than sorry. To put it in perspective, I've seen this happen despite treating many hundreds of patients with thyroid. Increasing your thyroid dose to levels the limit of the normal range may accelerate Osteoporosis (which is already common in Chronic Fatigue Syndrome/Fibromyalgia). Because of this, you need to check your thyroid (Total T3 and Free T4 –not TSH) levels after 4 to 8 weeks on your optimum dose of thyroid hormone. All this having been said, we find treatments with thyroid hormone to be better than aspirin and Motrin. If you have risk factors or Angina, do an exercise stress test to make sure your heart is healthy before beginning thyroid treatment. The risk factors include: 1. Diabetes, 2. Elevated cholesterol, 3. Hypertension, 4. Smoking, 5. Personal or family history of Angina, 6. Gout, 7. Age over 50 years old.

There are several forms of thyroid hormone, and one kind will often work when the other does not. Do not take thyroid within 6 hours of iron supplements or you won't absorb the thyroid (take your multivitamin with iron at bedtime). It can take 3 to 24 months to see the thyroid treatment’s full benefits.

3. Synthroid -(L-Thyroxine) 50mcg - (100mcg=.1 mg)

4. Armour Thyroid -30mg ( 1/2 grain = 30mg) (natural thyroid glandular treatment)

5. Thyrolar- 1/2 tablet (this equals T4 25mcg plus T3 6.25mcg)

For each of these 3 forms, take 1/2 tablet each morning on an empty stomach for 1 week and then 1 tablet each morning. Increase by 1/2 to 1 tablet each 2 to 6 weeks (till you're on 2 tablets). Check a repeat Total T3 and Free T4 blood level when you're on 2 tablets a day for 4 weeks. If okay, you can continue to raise the dose by ½ to 1 tablet each morning each 6 to 9 weeks to a maximum of 4 a day and then recheck the Total T3 and Free T4 4 weeks later. Adjust it to the dose that feels the best (lower the dose if shaky or if your pulse is regularly over 88/minute). Do not go over 4 tablets a day without discussing it with your doctor. When on your optimum dose, you can often get a single tablet at that strength.

6. Sustained Release T3 -(T3 SR = activated thyroid) -get 7 ½ to 15mcg capsules (when you are up to 60mcg a day - order 60mcg capsules as well. It is much cheaper to get one large dose capsule than many smaller ones).

In Fibromyalgia, resistance to normal thyroid doses may occur and patients often need very high levels of activated T3 SR Thyroid to improve. One research group feels that the average dose needed in Fibromyalgia is 125mcg each morning, which is higher than your body's normal production. because we are often going above normal levels with T3 SR, the risks/side effects noted above increase. Because of this, if you have risk factors, it is more important to consider an exercise stress test to make sure your heart is healthy (i.e., no underlying Angina) before beginning this protocol. Also, if your Total T3 blood test goes above normal (the Free T4 will normally be low on this treatment), consider a Dexa (Osteoporosis) Scan every 6 to 18 months while on treatment. This having been said, in our experience this treatment has been quite safe and, in some Fibromyalgia patients, dramatically effective. Begin with 7 ½mcg each morning and continue to increase by 7 ½mcg each 3 days until you're at 60mcg a day and then increase by 15mcg a day each 4 to 6 weeks until (whichever comes first):

--You reach 120mcg each morning (or 60mcg if you're over 50 years old unless approved by your physician)

--You feel healthy

--Your oral temperature is routinely at least 98.4° during midday

--You get shakiness, worsening significant palpitations (occasional "flip-flops" are common) or other side effects.

Check a Total T3 level each 2 months and discuss with your doctor if it is above normal (which it may need to be). If you feel no better even on the maximum dose, taper off (decrease by 7 ½mcg each 3 days until you're at 15mcg a day. Take 15mcg a day for 3 weeks. Then take 7 ½mcg a day for 3 weeks and then stop).
After being on treatment for 3 to 4 months, many patients can lower the T3 dose or stop it. Feel free to try dropping the dose. If you feel better initially and then worse (beginning more than 4 weeks after starting a new dose), you probably need to lower the dose .

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Adrenal Hormones - helps your body deal with stress and maintain blood pressure.

7. Cortef -5 mg tablets – ½ to 2 ½ tablet(s) at breakfast, ½ to 1 ½ tablets at lunch and 0 to ½ tablet at 4 PM. Use the lowest dose that feels the best. Most patients find that 1 to 1 ½ tablets in the morning and ½ to 1 tablet at noon is optimal, and take it with food if it causes an acid stomach. Do not take over 4 tablets a day without discussing the risks with your physician. Take Calcium (see #3 under “Nutritional Treatments”) if on Cortef; if taken too late in the day, Cortef can keep you up at night. You can double the dose for up to 1 to 3 weeks (to maximum 7 tablets a day), during periods of severe stress (e.g., infections - see or call your doctor regarding the infection and let him/her know you're raising the dose). If routinely taking over 4 tablets a day, wear a "Med-Alert bracelet" that says "on chronic Cortisol treatment." Take vitamin C 500mg twice a day for adrenal support. Panax Ginseng 100mg twice a day (taken in "6 week on and 2 week off” cycles) can also help your adrenals to heal. After 9 months, you can try to wean off the Cortef (decrease by ½ tablet a day each 2 weeks) if you feel OK (or no worse) without it.

8. DHEA - take a dose each morning or twice daily (lower the dose if acne or darkening of facial hair occurs). Keep your DHEA-Sulphate levels between 140-180mcg/dL for females and 300-400mcg/dL for males. If you have breast cancer, do not use without your physician's approval. See product information sheet for dosing.

9. Florinef - (fludrocortisone) -0.1mg- 1 tablet each morning. Begin with ¼ tablet and increase by ¼ tablet each 3 to 7 days. Increase more slowly if headache occurs. Increase your water, salt and potassium (e.g., 12 oz V-8 juice and one banana a day) intake. See the neurally mediated hypotension (NMH) information sheet and check potassium level and blood pressure each 6 weeks for 4 months and then every 3 to 4 months.

9. Increase your salt (to about 8 to 12gms a day) and water (approximately 1 gallon a day) intake a lot. If your mouth and lips are dry (and you're not on Elavil) you're dehydrated - drink more water (or herbal tea or lemonade sweetened with Stevia), not sodas or coffee.

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Other Hormones

1. Oxytocin- 10 units each morning by mouth; and by I.M. injection as is helpful. The injections may sting. If so, you can add Lidocaine 2/10 to 5/1 occ (without Epinephrine) to the Oxytocin.

2. Ortho-novum 1135- Begin the Sunday after this period. Its effectiveness as birth control begins after you've been on it the first week. If you miss a pill, add alternate contraception that cycle. Its effectiveness as birth control is decreased while on Doxycycline or Amoxicillin/Augmentin family antibiotics.

3. Natural Progesterone -100mg daily if over 48 years old OR 200mg a day for the 16th to 25th day of your cycle if under 48 years old. Take it at night.

4. Testosterone -Males 100mg ( ½ cc) shot every 7 days or 25 to 50mg (order 100mg/gm of cream) 2 to 3 times a day (less if acne, or in females, darkening of facial hair occurs). Rub the cream into an area of thin skin on the abdomen, inner thigh or inner arms.

5. Testosterone –Females 2mg tablets or cream, 1 to 2 times a day –make 4mg/gm of cream.

6. Somatomed -Helps make growth hormone -take 2 tablets on an empty stomach (at least 2 hours after eating), 1 hour before bedtime on weeknights (don't take Saturday and Sunday night). After 3 months, stay off of it for 2 to 4 weeks.

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Antiviral Agents -(See the article "Treating Respiratory Infections Without Antibiotics" in Volume 2, Issue 2 of my newsletter or on our web site at http://www.endfatigue.com.

1. Famvir- (famciclovir) -750mg -3 x a day. If you are feeling better in 1 month, continue Famvir until you feel well for 2 more months. If you're not better in 6 weeks, stop it. Continue it as long as needed to feel well. Take Echinacea while on Famvir and Lysine.

2. Lithium -300mg a day. If tremor, take 2 teaspoons of Expeller Pressed Safflower Oil from a health food store (uncooked - e.g., as salad dressing) daily or lower the dose. Check Lithium level one month after beginning medication. Then check a Lithium and thyroid blood test (Free T4) each 6 to 12 months.

3. Monolaurin -300mg capsules. Take 9 capsules once a day on an empty stomach for 1 week, followed by 6 capsules once a day for 20 days. Take Lysine 1500mg twice a day while on Monolaurin.

4. Olive Leaf -500mg - 2 capsules 3 times a day for 10 to 14 days for respiratory infections.

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Anti-Yeast Treatment

1. Avoid sweets -this includes sucrose, glucose, fructose, corn syrup, or any other sweets until the doctor says that it is okay to include them in your diet again. Avoid fruit juices which are naturally sweet. Having 1-2 fruits a day (the whole fruit as opposed to the juice) is okay.

2. Stevia is wonderful (it is an herbal sweetener) - use all you want.

3. Acidophilus or other beneficial milk bacteria. 3 to 6 billion units a day (refrigerated is preferable). Do not take within 6 hours of taking an antibiotic. Resume it immediately after the antibiotics are completed (e.g., Cipro or Doxycycline).

4. Caprylic Acid - 1 to 3 capsules 3 times a day with meals for 3 to 4 months and then as needed (1800 to 3600mg a day).

5. Garlic -1 clove 1 to 3 times a day with meals (crushed in olive oil with salt tastes great on bread).

6. Mycelex Oral Lozenges (for Thrush and/or "in the mouth" sores) -Suck on 1 lozenge, 5 times a day for 1 to 4 days (as needed). After sucking on it awhile (e.g., 10 minutes), put pieces of the lozenge up against sore(s) until you are tired of it being there.

7. Nystatin -500,000 units- 2 tablets 3 x a day. Begin with 1 a day and increase by 1 tablet a day until you are up to the total dose. Your symptoms may initially flare as the yeast die off. If this occurs, decrease the dose and then increase the Nystatin more slowly or stop for awhile until symptoms decrease. The Nystatin is usually taken for 5 to 8 months. If nausea occurs take 2 twice a day and/or switch to the Nystatin powder in capsules or mixed in water (available from Cape Drug at 800-248-5978). Repeat Nystatin for 4 to 6 weeks anytime you take an antibiotic or have recurrent bowel symptoms.

8. Diflucan –200mg a day, OR -Sporanox- (itraconazole) –100mg, take 2 each day (simultaneously) with food for 6 weeks.

Begin taking the Diflucan or Sporanox 4 weeks after beginning the Nystatin. If the symptoms have improved and then worsen when you stop the antifungal, refill the prescription for another 6 weeks. (Note: A 6-week supply costs over $500!) If your symptoms flared when you began the Nystatin, begin with ¼ to ½ the above dose for the first week. Do not take Seldane, Hismanyl, Propulcid, cholesterol lowering agents related to Mevacor or antacids (e.g., Tagamet) while on Sporanoxl Diflucan 200mg a day may be substituted for Sporanox if you are on antacias. Do not take Seldane, Hismanyl, Propulcid or Mevacor family medications with Diflucanl. Take Lipoic Acid any time you take Sporanox or Diflucan. Also, taking Betaine HCL (stomach acid to help digestion –available at most health food stores) at the same time as the Sporanox, can dramatically increase Sporanox’s absorption and effectiveness. Lipoic Acid may decrease the risk of liver inflammation from the Diflucan or Sporanox. If you need to stay on these medications more than 3 months, check liver blood tests (ALT, AST) every 3 months. If you feel well and symptoms (especially bowel symptoms) recur over time, consider retreating yourself with Nystatin and/or Caprylic Acid and Oregano Oil and/or Sporanox (or Diflucan) for 1 month as needed. If you have a low income and no prescription insurance coverage, the Diflucan company may supply it to you for free. Call 800-869-9979 for information (let them know you have immune suppression and fungal overgrowth).

9. Oregano Oil (enteric coated) -2 capsules on an empty stomach 3 times a day for 3 to 4 months, then 2 a day as needed for yeast overgrowth.

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Immune Stimulants

1. Echinacea -300 to 325 mg -3 x a day (also take while on Famvir). Stay off the Echinacea for 1 week each month (or it will stop working). It may also improve adrenal function.

2. MgN3 -250mg capsules -2 to 4 capsules 4 times a day for 2 weeks. Then take 2 twice a day. This natural product triples some important components (natural killer cells) of your immune system.

3. Selenium -200mcg a day (in addition to the Selenium 200mcg in your multi-vitamin) for 6 months. NOTE: You may get toxic if you take over 200mcg a day for over 6 months.

4. Aloe Vera –75mg.

5. IP-6 -Take 5 to 8 grams a day.

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For Brain Fog

1. Ginkgo Biloba (standardized to 24%) -60mg 1 twice a day for brain fog; 2 twice a day for depression or sexual dysfunction from antidepressants (takes 6 weeks to work).

2. Piracetam - 1200mg twice a day for 2 weeks, then take 2400mg twice a day for 2 weeks. Then adjust to optimum dose (up to 4800mg a day). Can be ordered from England. Take with Hydergine (web site – http://www.antiagingsystems.com).

3. Hydergine -4 to 6mg each morning.

4. DMAE - up to 400mg a day.

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For Migraines -Magnesium (see #16 under “Nutritional Treatments”) is also very important.

1. Vitamin B2 (riboflavin) –400mg a day to prevent migraines.

2. Feverfew- 250mg 1 to 3 times a day to prevent migraines.

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Treatment For Parasites

1. Flagyl (metronidazole) -750mg 3 x a day for 10 days. Followed by Yodoxin for many parasites. For Clostridium Difficile take 250mg, 4 times a day or 500mg, 3 times a day. It may cause nausea/vomiting (uncomfortable but usually not worrisome). Do not drink alcohol while on this medication as it will make you vomit. The SR (sustained release) form is easier on the stomach (as is the brand name form). If you get numbness/tingling in your fingers (or it worsens if you usually have it) stop the Flagyl.

2. Yodoxin (iodoquinol) -650 mg- 3 x a day for 20 days after Flagyl is completed.

3. Tinidazole -2000mg --Once daily for 3 consecutive days with food (for Entamoeba Histolytica) OR 3 doses each 2 weeks apart (for Giardia or Dientamoeba Fragilis).

4. Humatin (Paromomycin) -500mg 3 times a day for 10 days (for Cryptosporidium).

5. Zithromax -250mg 1 a day on an empty stomach for 10 days, along with Bactrim 1 tablet twice a day for 10 days (alternate treatment for Cryptosporidium). Add Artemesia.

6. Bactrim DS -1 tablet twice a day plus Yodoxin 650mg 3 times a day with food for 10 days. Do not take folic acid supplements (e.g., B Complex or multivitamins) for these 10 days of treatment (for Blastocytosis).

7. Amphotericin B -100mg twice a day plus Tinidazole 500mg twice a day plus Furoxone (Furazolidone) 1 tablet twice a day. Take these 3 together with food for 5 to 7 days (Amphotericin 8 and Tinidazole are available from Clark's Pharmacy 800-480-3432) (treatment for refractory Blastocytosis).

8. Lactoferrin -350mg, 1 to 3 capsules at bedtime.

9. Artemesia Annua (an herbal antiparasitic) -500 mg- 2 tablets 3 x a day for 20 days.

10. Tricyclin (an herbal antiparasitic) -2 tablets 3 x a day after meals for 6-8 weeks (concentrated Artemesia).

11. Colostrum -3 capsules 3 x a day for 8-12 weeks. Then stop or use the lowest dose needed for symptoms. If nausea or indigestion occurs, lower the dose to a comfortable level for 1-2 weeks till it passes. Take on an empty stomach.

12. Quinacrine -100mg a day for 5 days. May be useful for empiric therapy of suspected but not identified parasites (controversial).

13. Albendazole -400mg a day for 5 days. May be useful for empiric therapy of suspected but not identified parasites.

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Treatment for Bacterial, Mycoplasma, Chlamydial, Bladder Infections With E-Coli or Other Infections

These infections usually take months to years to eradicate. It is common to flare your symptoms (from the infection "die off') during the first 2 weeks of treatment. Take the antibiotics for 2 months and, if you feel better, then repeat 6 week cycles till your symptoms stay gone. Antidepressants, Neurontin, and/or Codeine may block the antibiotic's effectiveness. Be sure to take Nystatin 2 tablets twice a day while on the antibiotics.

1. Cipro -(ciprofloxacin) -750mg -twice a day for 6 months. Do not take magnesium products (e.g., Fibrocare, some antacids, Pro Energy, From Fatigued To Fantastic® Formula) within 6 hours of Cipro or you won't absorb the Cipro).


2. Doxycycline -(a tetracycline) -100 mg -2 x a day for 6 months. Take Nystatin (at least 2 twice a day) while on the antibiotic. Your birth control pill may not work while on Doxycycline. Do not take any Doxycycline tablets older than its expiration date (very dangerous).


3. Zithromax (azithromycin) -600mg tablets -1 tablet a day (take with food if it bothers your stomach). Don't take magnesium-containing products within 6 hours of taking the Zithromax.

4. Biaxin- 500mg, 2 times a day.

5. D-Mannose – ½ teaspoon (2.5 grams) stirred in water every 2 to 3 hours while awake for 2 to 5 days for acute bladder infections (may use long term for chronic infections) caused by E. Coli (this causes approximately 90% of bladder infections). If not much better in 24 hours, get a urine culture and consider an antibiotic.

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Nonspecific Treatments -(#3 through 10 below may help treat NMH and decrease pain as well as helping boost energy).

1. Myers Cocktail -I.V. nutritional therapies (very helpful).

2. Antioxynol (grapeseed extract) -50mg --capsules -times a day.

3. Dexedrine- (dextroamphetamine) –5mg –1 to 2 tablets in the morning; plus ½ to 1 ½ tablets at noon; or Provigil 200mg –up to 1 in the morning and 1 at noon. As needed for energy. These amphetamine family stimulants are similar to Ritalin and may be addictive. Take less if you have caffeine-like shakiness. Most patients use 1 tablet in the morning and 2 at noon.

4. Zoloft -(sertraline) --mg --tablet(s) each morning or evening.

5. Paxil -(paroxetine) -20 mg --tablet(s) each morning.

6. Prozac -(fluoxetine) -20 mg --capsule(s) each morning. Begin with 10mg a day the first week if the full dose makes you hyper.

7. Effexor- (venlafaxine) –37 ½ mg tablets –times a day.

8. Serzone -(nefazodone) -100 mg -2 x a day for 1 week. then 150 mg 2 x a day.

9. Celexa –20mg a day.

10. Wellbutrin- (bupropion) as prescribed by your physician.

11. Aspirin- 81mg a day.

12. Heparin (blood thinner) subcutaneously, as many units/cc as recommended by your physician, twice a day for 1 month. Avoid any traumatic injuries. There are 10,000units/cc. If you have preloaded syringes L-unitslcc) use 1 syringe 2 times a day. This is a blood thinner - call immediately if you have any bleeding problems. Check the Platelet Count and PTT blood tests each 3 days for 9 days then weekly while on Heparin. Inject it into the fat (not muscle) in your abdomen. Use a different spot each time (you may get a bruise where the injection is given).

13. Coumadin (blood thinner) - each morning. Reacts with many medications. Be sure to check with your doctor before adding or deleting any medicines (even aspirin) while on Coumadin. Check these blood tests: Platelet Count and P.T.T. Blood Test each 4 days for 3-4 weeks and then every 3 months while on Coumadin. Begin this treatment 3 days before stopping Heparin -see Coumadin/Heparin instruction sheet for how to dose [sheet is available from Dr. Teitelbaum through http://www.endfatigue.com]

14. MSM (sulfur = methylsulfonylmethane) -500mg -6 tablets 2 times a day for 2-3 months, then as needed for allergies, wound healing, and arthritis. Take vitamin C 500mg with each dose to improve absorption. This is ok to take even if you are Sulfa allergic.

15. Humibid (guaifenesin) -600mg tablets, 1 to 2 tablets every 12 hours (see instruction sheet). No aspirin or herbals can be taken while on Guaifenesin. [Note: avoid salicylates while taking guaifenesin, as salicylates can block the benefits of guaifenesin.]

16. L-Serine -250mg -2 to 6 capsules a day.

17. Iberogast (digestive system herbal) -Take 20 drops 3 times a day in warm water with meals. Very helpful for indigestion (takes 4 to 8 weeks to work). From Phyto Pharmica.

18. Hypericum (St. John's Wort) -300 to 625mg -3 x a day (takes 6 weeks to see the mood lifting effect). Use one standardized to at least .3% hypericum. Can take 2/3 of the total daily dose at night to help sleep. Can take up to 2000mg hypericum a day if not on prescription antidepressants (otherwise limit to 1000mg a day).

19. Parlodel (Bromocriptine) -2 ½mg – ½ tablet at night for 1st week, then 1 tablet at night.

20. Peppermint Oil -Enteric/stomach coated (2/10 =.2cc) capsules, 1 to 2 capsules 3 times a day between meals (not with food) for spastic colon.

21. Simethicone (mylicon) -40 to 80mg, one tablet 3 times a day as needed for abdominal gas pains.

22. Turkey Rhubarb -For constipation take 2 at bedtime. If this does not solve the constipation then also take 2 in the morning (not with food).

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Pain Treatments (Antidepressants #4-10 under “Nonspecific Treatments” or Lithium may help Fibromyalgia pain)

1. Rhus tox (homeopathic treatment) -dissolve under the tongue as directed on the bottle as needed for muscle pain.

2. Ginger - dried -1000mg, 1 to 4 times a day or as tea (boil 1 Ogm or 1/3 oz. chopped up ginger -about ½ inch slice).

3. Phytodolor (herbal from Phyto Pharmica) -30 drops, 3 times a day. Takes 1 to 2 weeks to work.

4. Arizona Pain Formula Cream -Rub a pea size amount into painful areas 3 times a day as needed (from Ron Partain Pharmacy 800-666-1385). You can use this on up to 3 or 4 "silver dollar" sized areas at a time.

5. Glucosamine Sulfate -500mg, 3 times a day (for arthritis). Takes 6 weeks to see if it will help. When the maximum benefit is seen, you can decrease to the lowest dose that maintains the effect.

6. Lidocaine Intravenously (I.V) --mg ( mg 1st dose) I.V. each 3 to 20 days as needed. Can give up to 120mg per hour.

7. Lidocaine 15%in PLO Gel -Rub on areas of nerve pain as needed. From Ron's Pharmacy (see #111).

8. Robaxin- (methocarbimol) -750mg -1 to 2 capsules 3 to 4 times a day as needed for pain (sedating).

9. Daypro -600mg -2 each morning as needed. Aspirin family medications can cause stomach bleeding. Take with an antacid or food if it upsets your stomach. If gastritis persists, stop the medicine or lower the dose. If you have a black stool (and are not taking iron tablets or Pepto Bismol), this may represent a life threatening stomach bleed (the stool will often have a very foul smell). If this occurs, go to the emergency room immediately.

10. Voltaren --mg -times a day as needed. Aspirin family medications can cause stomach bleeding. Take with an antacid or food if it upsets your stomach. If gastritis persists, stop the medicine or lower the dose. If you have a black stool (and are not taking iron tablets or Pepto Bismol), this may represent a life threatening stomach bleed (the stool will often have a very foul smell). If this occurs, go to the emergency room immediately.

11. Zanaflex- (tizanidine) -4mg -1 to 2 tablets 3 times a day as needed for pain (sedating).

12. Dextromethorphan (DM) -50mg -4 times a day with each dose of narcotic (e.g., codeine/vicodin) makes the narcotic more effective.

13. Copper/Magnet Bracelet

14. Ultram- (Tramadol) –50mg 1 to 2 tablets up to 4 times a day as needed for pain. Caution: May rarely cause seizures or raise serotonin too high when combined with antidepressants. May cause nausea/vomiting.

15. Skelaxin -(metaxolone) -400mg 1 to 2 tablets twice a day as needed for pain. This is usually non-sedating.

16. Norflex Tablets -1 tablet twice a day.

17. Celebrex (Celecoxib) -100 to 200mg 1 to 2 times a day for pain. Do not take if you're allergic to sulfa or Aspirin (e.g., hives). Do not use over the 200mg a day while on Sporanox or Diflucan.

18. Vioxx (Refecoxib) -25mg, ½ to 1 tablet daily. Do not use if you are aspirin allergic (e.g., hives).

19. Neurontin (Gabapentin) to a maximum of 3600mg a day. Cut back if it causes any uncomfortable or unusual neurologic symptoms or excessive sedation. Begin with 300mg at night, slowly increase to 300mg 3 times a day as is comfortable. You can go up to 3600mg a day.

20. Baclofen -10 to 20mg 1 to 3 times a day (sedating).

21. Magnets -Start with spot magnets, insoles and seat. If they help in 2 months, consider a mattress pad.

22. Cod Liver Oil – ½ Tablespoon (5000mg) a day. Do not use if you are about to get pregnant -it has too much vitamin A.

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Dr. Goldstein Protocol Treatments

1. Nimotop (Nimodipine) -30mg 1 to 4 times a day as is beneficial for symptoms.

2. Nitroglycerin – ¼ to 1 tablet dissolved under the tongue as needed for muscle pain. May cause marked headache and/or dizziness the first 3 days it is used.

3. Naphzoline .1% Eye Drops -1 drop in each eye 3 to 4 times a day as needed for symptoms.

4. T RH Eye Drops -500units in 9cc artificial tears - 1 drop in each eye 3 to 4 times a day as is helpful.

5. Tasmar (talcopone) -100mg twice a day. Use if it helps mental clarity and energy.

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Follow Up Testing

1. Stool O&P (ova & parasite) at IPD Labs in Arizona in -week(s). Get a kit from UROKEEP (602) 545- 9236.

2. Stool culture and sensitivity -must be sent to Great Smokey Mountain Labs (800-572-4762).

3. Sleep apnea study (get insurance pre-authorization - it costs $2000).

4. IGE Food Allergy Blood Test -send to Great Smokey Mountain Lab (800-572-
4762). IGNORE the IgG Section -it is meaningless. Look at the IgE section.

5. DHEA -Sulphate level in -weeks (not DHEA level).

6. Free T4 and total T3 levels in weeks.

7. Potassium level in weeks.

8. Lithium level.

9. Free testosterone level in weeks.

10. Prolactin level in weeks.

11. AL T , AST -in -weeks (liver tests -if taking Sporanox or Diflucan for more than 3 months, check every 6 to 12 weeks).

12. HHV-6 -Viral culture -must send to Herpes Viral Diagnostics (414-529-3780) (costs approximately $270). They will give our patients a $65 discount and a free shipping code for any test after the first one.

13. Chronic Fatigue Syndrome Coagulation Blood Profile -must send to Hemex Labs (800-999-2568) (ISAC panel for Chronic Fatigue Syndrome/Fibromyalgia = FIB, F1 & 2:T/AT, SFM, PA score -$335).

14. Hereditary Thrombotic Panel -at Hemex Labs.

15. Blood test for Mycoplasma & Chlamydia (General Screens) -must send to The Institute For Molecular Medicine (714-903-2900).

16. Platelet Count and P .T. T .Blood Test -each 3 days for 9 days and then each week while on Heparin.

17. P .T ./INR Blood Test -each 2 days for the 1st 8 days on Coumadin, then every 2 weeks for 6 weeks then each 6 to 8 weeks while on Coumadin. Check 2 days after making any change to your medication and/or supplement regimen and consult your physician before making these changes. Keep the INR at the lowest level that leaves the patient feeling well, but not over 3.

This article is copyright Jacob Teitelbaum, M.D., 800-333-5287.

©2000 Pro Health, Inc.(ImmuneSupport.com)
All Rights Reserved.

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Additional Chronic Fatigue Syndrome Articles:

Understanding Chronic Fatigue Syndrome
Causes of Chronic Fatigue Syndrome
Diagnosis of Chronic Fatigue Syndrome

[ Questo messaggio è stato modificato da: mario il 2004-03-24 12:41 ]

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sempre dallo stesso sito:

Medications for Chronic Fatigue Syndrome

Drug Research: Ampligen
Pharmacologic therapy is directed toward the relief of specific symptoms experienced by the individual patient. Patients with Chronic Fatigue Syndrome appear particularly sensitive to drugs, especially those that affect the central nervous system. Thus, the usual treatment strategy is to begin with very low doses and to escalate the dosage gradually as necessary.

Prescription medications:
Low-dose Tricyclic Agents: Tricyclic agents are sometimes prescribed for Chronic Fatigue Syndrome patients to improve sleep and to relieve mild, generalized pain. Examples include doxepin (Adapin, Sinequan), amitriptyline (Elavil, Etrafon, Limbitrol, Triavil), desipramine (Norpramin), and nortriptyline (Pamelor). Some adverse reactions include dry mouth, drowsiness, weight gain, and elevated heart rate.

Antidepressants have been used to treat depression in Chronic Fatigue Syndrome patients, although non-depressed Chronic Fatigue Syndrome patients receiving treatment with serotonin reuptake inhibitors have been found by some physicians to benefit from this treatment as well or better than depressed patients. Examples of antidepressants used to treat Chronic Fatigue Syndrome include serotonin reuptake inhibitors such as fluoxetine (Prozac), sertraline (Zoloft), and paroxetine (Paxil); venlafaxine (Effexor); trazodone (Desyrel); and bupropion (Wellbutrin). A number of mild adverse reactions, varying with the specific drug, may be experienced.

Anxiety or anxiolytic agents:
Anxiolytic agents are used to treat panic disorder in Chronic Fatigue Syndrome patients. Examples include alprazolam (Xanax), clonazepam ( Klonopin), and lorazepam (Ativan). Common adverse reactions include sedation, amnesia, and withdrawal symptoms (insomnia, abdominal and muscle cramps, vomiting, sweating, tremors, and convulsions).

Nonsteroidal Antiinflammatory Drugs:
These drugs may be used to relieve pain and fever in Chronic Fatigue Syndrome patients. Some are available as over-the-counter medications. Examples include naproxen (Aleve, Anaprox, Naprosen), ibuprofen (Advil, Bayer Select, Motrin, Nuprin), and piroxicam (Feldene). These medications are generally safe when used as directed, but can cause a variety of adverse effects, including kidney damage, gastrointestinal bleeding, abdominal pain, nausea, and vomiting.

An infectious cause for Chronic Fatigue Syndrome has not been identified, and antimicrobial agents are not commonly prescribed for Chronic Fatigue Syndrome, unless of course the patient has been diagnosed with a concurrent infection. A controlled trial of the antiviral drug acyclovir found no benefit for the treatment of patients with Chronic Fatigue Syndrome.

Antiallergy Therapy:
Some Chronic Fatigue Syndrome patients have histories of allergy, and these symptoms may flare periodically. Non-sedating antihistamines may be helpful for Chronic Fatigue Syndrome patients. Examples include astemizole (Hismanal) and loratadine (Claritin). Some of the more common adverse reactions associated with their use include drowsiness, fatigue, and headache. Sedating antihistimines can also be of benefit to patients at bedtime.

Antihypotensive Therapy:
Fludrocortisone (Florinef) has sometimes been prescribed for Chronic Fatigue Syndrome patients who have had a positive tilt table test. Florinef is currently being tested in controlled studies for its efficacy in the treatment of Chronic Fatigue Syndrome patients.

Antihypertensive Therapy:
Beta blockers such as atenolol (Tenormin) have also been prescribed for patients with a positive tilt table test. Increased salt and water intake is also recommended for these patients. Adverse reactions include low blood pressure.

Experimental drugs and treatments:
Ampligen is a synthetic nucleic acid product that stimulates the production of interferons, a family of immune response modifiers that are also known to have anti-viral activity. One report of a double-blinded, placebo-controlled study of Chronic Fatigue Syndrome patients documented modest improvements in cognition and performance among Ampligen recipients compared with the placebo group.

These preliminary results will need to be confirmed by further study. Ampligen is not approved by the Food and Drug Administration (FDA) for widespread use, and the administration of this drug in Chronic Fatigue Syndrome patients should be considered experimental. Although the recipients of Ampligen in this study tolerated the drug well, the adverse reactions of this material are still incompletely characterized, and some participants did experience reactions that might be attributable to Ampligen.

Dehydroepiandrosterone (DHEA) was reported in preliminary studies to improve symptoms in some patients; however, this finding has not been confirmed and the use of DHEA in patients should be regarded as experimental. Gamma globulin (Gammar) is pooled human immune globulin. It contains antibody molecules directed against a broad range of common infectious agents and is ordinarily used as a means for passively immunizing persons whose immune system has been compromised, or who have been exposed to an agent that might cause more serious disease in the absence of immune globulin. Its use with Chronic Fatigue Syndrome patients is experimental and based on the unsubstantiated hypothesis that Chronic Fatigue Syndrome is characterized by an underlying immune disorder. Serious adverse reactions are uncommon, although in rare instances gamma globulin may initiate anaphylactic shock. High colonic enemas have no demonstrated value in the treatment of Chronic Fatigue Syndrome. The procedure can promote intestinal disease. Kutapressin is a crude extract from pig's liver. Its use should be regarded as experimental in any clinical circumstance, and there is no scientific evidence that it has any value in the treatment of Chronic Fatigue Syndrome patients. Kutapressin can elicit allergic reactions.

Source: Center for Disease Control


Drug Research - Ampligen
Ampligen is an experimental antiviral medication currently in Phase III testing for the treatment of Chronic Fatigue Syndrome. It is considered a "second generation interferon." In clinical trials conducted outside the United States, more than 50% of test subjects taking Ampligen showed both physical and mental improvement of symptoms. Unfortunately, most of the study groups were too small for the results to be published in the scientific literature. Although some researchers in the United States remain skeptical concerning Ampligen, Hemisherx Biopharma (Philadelphia), the drug manufacturer, is hoping that the current research trials will provide enough hard data to meet the criteria of FDA approval.

Source: American Association for Chronic Fatigue Syndrome, c/o Harborview Medical Center, 325 Ninth Avenue, Box 359780, Seattle, WA 98104

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Registrato: Aug 31, 2001
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Inviato: 2004-03-24 12:46   
Il sito ha molti articoli sulla CFS.
Ricordarsi però che il sito è commerciale ed ha come finalità la vendita di integratori ed affini.

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Registrato: Oct 23, 2003
Messaggi: 639
Inviato: 2004-03-24 12:54   
e poi un sacco di altre cose..

ho copiato quelli sopra perche resti traccia.

ad ogni modo esistono diversi siti sulla cfs.
Purtroppo manca un collegamento che aggiorni tutti su cosa si dice.. cosa si usa.. ecc ecc
e l'unica via che intravedo io è quella di frequentarli ogni tanto e raccogliere le varie info.

sono certo del resto che i vari centri (medici) si aggiornano continuamente.

leggere in giro può quantomeno "rassicurare" che le cure usate dappertutto non sono diverse. Che non ci sono prodotti da primo mondo secondo mondo e terzo mondo.

semmai una certa cautela "europea" nel utilizzare le persone come cavie umane (=introduzione di farmaci di cui non si sa bene i risultati)

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Registrato: Mar 12, 2004
Messaggi: 79
Località: Salerno
Inviato: 2004-03-24 20:28   

Ragazzi,la maggior parte di quegli integratori li ho assunti. più di un medico me li ha consigliati,non ho risolto nulla E' ovvio che un pò stai meglio se li prendi, rafforzano ,danno un pò di vitalità ,ma...
stiamo sempre punto e da capo.

Un bacio a tutti Imma

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Registrato: Jul 29, 2003
Messaggi: 629
Inviato: 2004-03-24 22:32   
Hello Takesha, welcome in our forum from Italycfs:)

Da Tip of the Day Immune support

Le vitamine antiossidanti si credono per ridurre il danneggiamento ossidativo del cervello, quindi proteggente la funzione conoscitiva. La ricerca animale da Perth in Australia occidentale ha mostrato che i meccanismi ossidativi relativi alla morte di un neurone delle cellule potrebbero svolgere un ruolo importante nell'invecchiamento e gli antiossidanti possono proteggere dal neurodegeneration. La ricerca umana in Italia inoltre ha mostrato un collegamento fra il declino conoscitivo e la condizione antiossidante: Gli oggetti anziani con danno conoscitivo delicato o la malattia del Alzheimer hanno mostrato a plasma più basso i livelli antiossidanti confrontati ai comandi sani.

[ Questo messaggio è stato modificato da: Noumeno il 2004-03-25 00:39 ]

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